{"id":3185,"date":"2023-05-15T09:27:56","date_gmt":"2023-05-15T08:27:56","guid":{"rendered":"https:\/\/www.calligo.io\/insights\/\/"},"modified":"2024-01-18T14:16:19","modified_gmt":"2024-01-18T14:16:19","slug":"making-complex-data-available-for-the-benefit-of-society","status":"publish","type":"post","link":"https:\/\/www.calligo.io\/insights\/data-insights\/making-complex-data-available-for-the-benefit-of-society\/","title":{"rendered":"Making complex data available for the benefit of society"},"content":{"rendered":"\n<p><\/p>\n\n\n\n<div class=\"wp-block-buttons alignwide is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-8057eaf3 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button has-custom-font-size has-small-font-size\"><a class=\"wp-block-button__link has-black-color has-vivid-green-cyan-background-color has-text-color has-background wp-element-button\" href=\"https:\/\/open.spotify.com\/show\/7bv5zDim4bNUB6ZRCBYsjT?si=80660be038a84ccb\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Listen on Spotify<\/strong><\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>\n\n\n\n<p>In Calligo\u2019s <a href=\"https:\/\/youtu.be\/m59gJCyqdgU\">latest Beyond Data podcast<\/a>, Tessa Jones (Chief Data Scientist) is joined by <a href=\"https:\/\/ghss.georgetown.edu\/people\/graeden\/\">Dr Ellie Graeden<\/a>, Research Professor (Center for Global Health Science and Security) at Georgetown University. Here we explore some of the episode\u2019s highlights:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>The inherent conflict of private data and the public good<\/li>\n\n\n\n<li>Protecting individual rights within federated learning<\/li>\n\n\n\n<li>The importance of effective communication and a common language<\/li>\n\n\n\n<li>Designing systems and policies that work together<\/li>\n\n\n\n<li>Focusing regulation on outcomes, not creating data siloes<\/li>\n<\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>At societal level, poor communication costs lives<\/strong><\/h2>\n\n\n\n<p>Transitioning data across and between departments and <a href=\"https:\/\/www.calligo.io\/services\/data-analytics\/\">data systems<\/a> has historically been fraught with problems \u2013 who owns it? Who pays for it? Is it understandable and translatable into meaningful and actionable insights for the end user?\u00a0<\/p>\n\n\n\n<p>Having worked extensively in disaster response, Dr Graeden has seen first-hand the potentially life-threatening issues that can arise when government departments\u2019 data platforms produce incompatible outputs:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>If 20,000 people need water, how many pallets need to be shipped?<\/li>\n\n\n\n<li>If 10,000 electricity meters have been knocked out by a hurricane, how many people need feeding?<\/li>\n<\/ul>\n\n\n\n<p>In such scenarios, identifying individuals amongst population-level data is crucial if the help provided is to be sufficient.<\/p>\n\n\n\n<p><em>\u201cWe have to be able to really effectively move and communicate and share data that are relevant, in ways that they can get used by people all across the system\u201d<\/em><\/p>\n\n\n\n<p>Of course, any <a href=\"https:\/\/www.calligo.io\/services\/data-warehousing-as-a-service\/\">data system design<\/a> should ensure privacy and protection for personal data. \u2018Big data\u2019 is still relatively new, and as such more powerful and widespread regulatory controls are now being introduced, although the US still does not have consistent requirements for how data should be handled. Fundamentally, meeting a population\u2019s needs today, and planning for them tomorrow, requires the data of individual people to be analysed. Personal data must be shared quickly, effectively and all the while protecting individual rights. Data system design must therefore:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Include all players<\/li>\n\n\n\n<li>Consider cultural constraints<\/li>\n\n\n\n<li>Keep out bias<\/li>\n\n\n\n<li>Ensure the right words and phrases are used<\/li>\n\n\n\n<li>Focus on the \u2018so what\u2019, why does it matter?<\/li>\n<\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><strong><em>\u201cEvery single thing we experience can be captured as data\u201d<\/em><\/strong><\/h2>\n\n\n\n<p>Even the most mundane moments in our daily lives leave a digital footprint, we shed data everywhere. But when does \u2018my\u2019 data become public, or the property of the software developer or the service provider? VR headsets collect ephemeral data that is analysed and applied for that one end user, but if that data is assumed to fall under GDPR the potential to use it for positive outcomes is severely limited. For example, should authorities be notified if content viewed and generated is illegal or harmful? And what if that chip can detect if the user is having a stroke, is that data classified as <a href=\"https:\/\/www.cdc.gov\/nhsn\/hipaa\/index.html\">\u2018health\u2019 data<\/a>? Can it be used to alert the individual to their medical emergency without contravening legislation? What if your mouse clicks can detect the early stages of Parkinson\u2019s? Should you, could you, be told?<\/p>\n\n\n\n<p><em>\u201cIf you\u2019re treating this data as health data, then they have a very different set of regulatory constraints. HIPAA isn\u2019t going to regulate those because it\u2019s not a health care provider or a health insurer\u201d<\/em><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Piercing the veil<\/strong><\/h2>\n\n\n\n<p>The conflict between personal protection and public good is everywhere, and Dr Graeden believes that some new data laws will create problems for federated learning. Legislation has clear boundaries (speed limits, blood alcohol levels) whereas science deals in spectrums, probabilities and unknowns.<\/p>\n\n\n\n<p>Deleting an individual\u2019s personal data from the model breaks the system, contradicting what regulators are trying to achieve. The solution is to prioritize outcomes, not processes \u2013 it doesn\u2019t matter whether you write the rules with a pen and paper, or with AI, as long as you write the rules. Expanding the framework by setting gradients of data availability affords protection for individuals, whilst making data available that informs better decision making for public bodies.<\/p>\n\n\n\n<p><em>\u201cData is nothing more, nothing less, than an abstract description of our world. A useful and powerful language that can tell us things that other languages don\u2019t\u201d<\/em><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Data can no longer exist in siloes if it\u2019s to be useful to society<\/strong><\/h2>\n\n\n\n<p>There is now a healthy global appetite for the discussion around data, thanks in the main to two recent developments:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Covid gave us huge amounts of data about mortality levels, vaccination rates, hospitalisation trends \u2013 all of which were in the public consciousness every day<\/li>\n\n\n\n<li>AI and ChatGPT \u2013 articles and debates about the pros and cons are everywhere, discussion is not just in the scientific community<\/li>\n<\/ul>\n\n\n\n<p>The key challenges now for <a href=\"https:\/\/www.calligo.io\/services\/data-science\/\">data scientists<\/a> are expectation management and communication &#8211; we need to be clear about aims and specific about context, as well as knowing what to leave out to avoid overwhelm and misunderstanding. Unfortunately, scientists are not always great communicators (using complex terminology and detail, rather than common parlance and generalization) <a href=\"https:\/\/www.weforum.org\/agenda\/2021\/06\/lessons-for-science-communication-from-the-covid-19-pandemic\/\">as Covid demonstrated<\/a>:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Did having a vaccine mean you wouldn\u2019t get sick? Or just less sick?<\/li>\n\n\n\n<li>\u2018Everyone should wear a mask\u2019 became \u2018wear a mask if you can\u2019. This was due to limited supply, but it appeared that the science was not clear<\/li>\n<\/ul>\n\n\n\n<p><em>\u201cThe scientific approach means you never have an answer\u2026 we are trained as scientists to focus on the fact that we <\/em>don\u2019t<em> know\u201d<\/em><\/p>\n\n\n\n<p>In fact, the only answer is that the right data, used consistently and communicated clearly, will always allow us to be prepared, not reactive. To make decisions for the public good that protect every individual.<\/p>\n\n\n\n<p>You can find out more about the common language of privacy in our <a href=\"https:\/\/share.hsforms.com\/1A7dcl7FDQhyxSkh4wAmZhQ1pxn6\">Rosetta Stone eBook<\/a>.<\/p>\n\n\n\n<p>You can also watch Tessa\u2019s fascinating podcast with Dr Graeden below.<\/p>\n\n\n\n<section id=\"\" class=\"block-video      \">\n\t<div class=\"container\">\n\t\t<div class=\"video-inner\">\n\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\n\t\t\t<a href=\"https:\/\/youtu.be\/m59gJCyqdgU\" data-lity class=\"video-item\" data-aos=\"fade-down\">\n\t\t\t\t<picture alt=\"\"><source media=\"(min-width: 992px)\" data-srcset=\"https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-1400x900-c.png 1.000x,https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-1920x1234-c.png 1.371x\"> <source media=\"(min-width: 576px)\" data-srcset=\"https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-800x600-c.png 1.000x,https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-1920x1440-c.png 2.400x\"> <source media=\"(min-width: 0px)\" data-src=\"https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-400x300-c.png\" data-srcset=\"https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-400x300-c.png 1.000x,https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-800x600-c.png 2.000x\"> <img data-src=\"https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-400x300-c.png\" data-srcset=\"https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-400x300-c.png 1.000x,https:\/\/www.calligo.io\/wp-content\/uploads\/fly-images\/3187\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px-800x600-c.png 2.000x\" alt=\"\" width=\"1400\" height=\"900\" class=\"lazyload\"><\/picture>\t\t\t\t<div class=\"play-icon\" data-aos=\"fade-in\">\n\t\t\t\t\t<svg width=\"34\" height=\"40\" viewBox=\"0 0 34 40\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M31.18 16.8657L5.29472 1.56987C3.16212 0.319727 0 1.56987 0 4.58491V35.1766C0 37.971 2.94151 39.6624 5.29472 38.2652L31.18 22.9693C33.4597 21.5721 33.4597 18.2629 31.18 16.8657ZM30.0034 20.9103L4.11811 36.2061C3.3092 36.6474 2.35321 36.1326 2.35321 35.1766V4.58491C2.35321 3.40831 3.52981 3.26124 4.11811 3.62892L30.0034 18.9248C30.7388 19.366 30.7388 20.4691 30.0034 20.9103Z\" fill=\"currentColor\"\/><\/svg>\n\t\t\t\t<\/div>\n\t\t\t<\/a>\n\t\t<\/div>\n\t<\/div>\n<\/section>\n\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-51f7783f wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button has-custom-font-size has-small-font-size\"><a class=\"wp-block-button__link has-black-background-color has-background wp-element-button\" href=\"https:\/\/www.calligo.io\/insights\/blog\/unlocking-the-power-of-ai-and-natural-learning\/\"><strong>&lt;&lt; PREVIOUS EPISODE<\/strong><\/a><\/div>\n\n\n\n<div class=\"wp-block-button has-custom-font-size has-small-font-size\"><a class=\"wp-block-button__link has-vivid-cyan-blue-background-color has-background wp-element-button\" href=\"https:\/\/www.calligo.io\/insights\/blog\/lie-machines-the-global-fight-against-misinformation\/\"><strong>NEXT EPISODE &gt;&gt;<\/strong><\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>\n\n\n\n<p><a id=\"_msocom_1\"><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>In Calligo\u2019s latest Beyond Data podcast, Tessa Jones (Chief Data Scientist) is joined by Dr Ellie Graeden, Research Professor (Center for Global Health Science and Security) at Georgetown University. Here we explore some of the episode\u2019s highlights: At societal level, poor communication costs lives Transitioning data across and between departments and data systems has historically [&hellip;]<\/p>\n","protected":false},"author":34,"featured_media":3187,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[44,142,31,33,140,145,143,121,144],"tags":[],"post_format_type":[39],"class_list":["post-3185","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-beyond-data-podcast","category-data-governance","category-data-insights","category-data-privacy","category-data-privacy-glossary","category-data-strategy","category-data-visualization","category-glossary","category-machine-learning-glossary"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.0 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Making complex data available for the benefit of society | Calligo<\/title>\n<meta name=\"description\" content=\"Listen on Spotify In Calligo\u2019s latest Beyond Data podcast, Tessa Jones (Chief Data Scientist) is joined by Dr Ellie Graeden, Research Professor (Center In Calligo&#039;s latest podcast, we explore how consistent and clear communication can overcome challenges presented by the inherent conflict of private data and the public good.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.calligo.io\/insights\/data-insights\/making-complex-data-available-for-the-benefit-of-society\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Making complex data available for the benefit of society | Calligo\" \/>\n<meta property=\"og:description\" content=\"Listen on Spotify In Calligo\u2019s latest Beyond Data podcast, Tessa Jones (Chief Data Scientist) is joined by Dr Ellie Graeden, Research Professor (Center In Calligo&#039;s latest podcast, we explore how consistent and clear communication can overcome challenges presented by the inherent conflict of private data and the public good.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.calligo.io\/insights\/data-insights\/making-complex-data-available-for-the-benefit-of-society\/\" \/>\n<meta property=\"og:site_name\" content=\"Calligo\" \/>\n<meta property=\"article:published_time\" content=\"2023-05-15T08:27:56+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-01-18T14:16:19+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.calligo.io\/wp-content\/uploads\/2023\/05\/Beyond-Data-Podcast-Complex-data-intro-slide-1920x1080px.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta 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